Ambassador Program
Get Involved
Donate

Media

USP7 in the News
USP7 Genetic Mutation
USP7 Genetic Mutation
Article featuring a fundraising event for Ella
Tyler Paper Article featuring Rosie
USP7 Genetic Mutation
USP7 Genetic Mutation
WCSH 6 - NBC Portland featuring Tess
Podcast - DNAToday
USP7 Genetic Mutation
USP7 Genetic Mutation
ABC News Story Covering the Familiy's Journey to Diagnosing USP7
5News Covering Ella-Marie and her rare diagnosis
USP7 Genetic Mutation
USP7 Genetic Mutation
DailyMail article discussing the role of social media
The Atlantic - Building A Community
USP7 Genetic Mutation
USP7 Genetic Mutation
Seattle Times - Needle in the genetic haystack: How a new UW website is helping families, scientists
Washington Post - What do you do when you have one of the rarest diseases around?
USP7 Genetic Mutation
USP7 Genetic Mutation
KQED - Stirrings of Hope for Families Isolated by Rarest of Genetic Conditions
USA Today - Her doctors couldn't solve her health mystery, but Facebook did
USP7 Genetic Mutation
USP7 Genetic Mutation
DNA Science Blog discussing the role of social media
KQED - Through Social Media, Family Connects to Rare Diagnosis – And Hope
USP7 Genetic Mutation
EurekAlert - Solving a genetic mystery
French Media
USP7
USP7
Le Telegramme - Clara's Parents Mobilized in France
76actu - Zoé is back from America full of hope, suffering from a rare disease near Rouen